September 16, 2026
Today, we get to spotlight Owen. This kiddo had a light that shined like no other. I honestly dont know how to explain the genuine good energy that poured of this boy. He was Lukeys neighbor during one of his chemo rounds. I met his mama, Megan, one late night in the parents room. Owen was put on bowel rest at one point and couldnt eat for a while.. his amazing mom wouldnt eat in front of him either. She'd sneak down to the parents room at night and we'd eat the microwave meals and kinda have a little vent sesh when we met down there. She was also such a bright light for me during that time...
Meet Owen 🎗
Owen was born on April 16th 2018. Owen is an identical twin, to Rhett. They did everything together, finished each other’s sentences, had their own language, they truly were the best of friends. Their first night apart from each other in 5.5 years, was the night of Owen’s first craniotomy surgery. Owen loved all things outdoors, riding bikes, swimming, fishing, catching bugs, going to the lake, and swinging on his swing set. He loved SpongeBob, spaghetti, the color green, giraffes, and flamingos, crafts, and spending time with family. He was the best big brother to his little sister Collins, and the best brother and friend to Rhett.
Owen was diagnosed with a rare form of brain cancer on November 22, 2023, at five years old. Owen had an emergency craniotomy that night to remove his tennis ball sized tumor. During his recovery he bounced back quickly, getting right back into the swing of things. After 7 of weeks of his team struggling to identify his cancer type, they were unable to nail it down, and we were left with a diagnosis of CNS Sarcoma, which is a general description, not an exact tumor type. In January 2024, Owen had another emergency craniotomy due to a regrowth of the tumor and a severe brain bleed. Once beginning chemotherapy, Owen had a severe neurotoxic reaction and coded during each of his first two rounds. Owen completed an astounding accomplishment of 32 of 33 radiation treatments awake, which is a huge accomplishment for such a young kid. On the eve of his final treatment at the first of June, Owen had another brain bleed, which led to the discovery of additional tumors within his brain along with new tumors in his spinal column. Over the course of the next two months, his cancer would strengthen, and his side effects of treatment would get worse. Owen began to lose mobility and coordination. During this time our family was able to go to Disney World thanks to the generosity of Make-A-Wish Foundation. August 5, 2024, we found out that Owens disease had progressed further and there would no longer be any treatment options. Owen came home to live a full life with his twin brother Rhett and sister Collins who he had missed so much time with. Owen was able to enjoy sporting events with the Kansas City Chiefs, Kansas City Royals and the Kansas City Current. He was able to make lasting memories with his family. On September 22, 2024, at six years old, Owen peacefully went to be with the Lord. Today Owens legacy of love, compassion and joy for life live on through his brother and sister, those who knew and loved him and now shared with other battle buddies going through the battle of pediatric cancer..
Owens parents created @Owen's Battle Buddies and they're doing amazing things. Go check them out 💚🫶🎗